Austin sisters diagnosed with genetic disorder known as childhood Alzheimer's

Belle and Abby are working to make memories at a young age while a genetic disorder aims to steal them. Belle is just six-years-old and has an important job of being Abby's big sister who is 21 months. 
 
This year Belle was diagnosed with Niemann Pick Type C-1. Not long after that, Abby was tested. She is a-symptomatic at this point. 
 
 It's a genetic disorder that only 500 children in the world have. Their parents are determined to do whatever it takes to save their little girls. According to an update on the family's GoFundMe page they leave for Chicago next week for the girls' first treatment. 
 
The fitness community has teamed up to hold a fundraiser for the family on May 14th. They are calling it Super Saturday for Belle and Abby. Proceeds from different classes around town will be put to supporting the family as they travel to see specialty doctors. Dusty Dark and Andrew Heller from City Surf stopped by Good Day Austin to spread the word about how you can help. 
 
Insurance doesn't cover the one of the drugs Belle needs to slow the progression of the disease. because it's not approved by the FDA yet. The family expects the medical costs and the travel costs along with the work they will have to miss will take a huge toll on them. Belle will need to be on the medication for as long as she lives. 
 
 
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